Ep92 Waves are meant for surfing: Preparing to travel with MS
From The Raw Nerve · 00:44:48
Show by MS Australia
Two LEEP members share practical, lived-experience tips on preparing to travel with MS, from booking to boarding.In this first episode of a two-part series on travel and MS, host Jeremy Henderson is joined by MS Australia Lived Experience Expert Panel (LEEP) members Rachel Fallis and Deanna Renee. Rachel, a former NSW Police detective sergeant, and Deanna, an artist diagnosed with MS at 17, share their MS journeys and what travel means to them: freedom, adventure, connection and memories that aren't centred on medical appointments.Topics covered:Preparing before you book and before you go – Rachel explains how she shapes trips around her energy, with one priority activity a day, rest days, longer stays and accommodation close to transport and restaurants. Deanna discusses heat sensitivity, airport assistance and learning that resting is not a failure.Advocacy and policy: making the whole journey accessible – From a coin-operated station toilet in Italy to long walks between airport gates, the guests share what can go wrong and what travel and transport systems need to do better, including dedicated disability contacts and the Hidden Disabilities Sunflower. Jeremy also outlines MS Australia's advocacy on the Whole Journey Guide and Aviation Disability Standards.Preparing for the realities of travel – Practical tips for the lead-up to departure: travelling with medications and doctors' letters, checking destination rules and travel insurance, timing trips around treatment, packing light, and building in recovery time after long flights. Plus, how to prepare mentally for the unexpected, because, as Deanna says, 'waves are meant for surfing'.The last word – Advice for anyone with MS who wants to travel but doesn't know where to start: start small, ask questions, speak with your healthcare team, and give yourself permission to rest and travel your own way.Part two, MS on the Road, will be published in 2027. This conversation is general in nature and should not replace individual medical, legal or travel advice.
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